Thursday, March 21, 2013

A PRICELESS CUT by Annie DeYoung

THE WHY? FOUNDATION – TOUCHSTONE THURSDAY





What is it about hair – growing it, curling it, coloring it, cutting it – just having it?  Why is it so important?  Why is losing it so painful?  

I’ve been a hairdresser for almost 25 years, the last decade or so just for friends and family.  I give them what I like to call the “priceless cut,” the one no one can afford because I only give it away to my nearest and dearest. 

I’m a screenwriter now, mostly of light teen comedies set in worlds where crushes and breakups and the machinations of mean girls are the worst that happens.  In my movies, no one loses their hair.  And no one has cancer.  In my real life, cancer happens, with all of its attendant losses:  breasts, bone, energy, hope – and hair.  Every person I’ve ever known who receives a diagnosis of cancer immediately dreads losing his or her hair. 

Fracking chemo.  It kills fast-growing cells – like cancer – but also mows down other fast-growing cells in its path, the things we’d like to keep, the things we think make us beautiful – things like hair, nails, eyebrows and lashes.

I had met Allison once or twice before her cancer diagnosis.  She knew just how to wear her fine, soft blonde hair.  She struck me as confident, smart, stylish, creative, and very, very pretty, like a lot of girls I knew who worked in Hollywood. Then came cancer and surgery and I found myself bringing her organic raspberries in the hospital.  She still looked beautiful.

Allison & Annie
July 1, 2011

I can’t remember exactly when she asked me to cut off her hair, but I took it as a sign that although we didn’t know each other well, we were now friends. She asked my opinion: how will she know when it’s time? I told her that when she sees more hair on her pillow in the morning than the night before, it would be time.


A week later, we set a date. I was busy that day, writing a script, on a deadline, as usual. I did what I often do in these circumstances: I made what was about to happen unimportant. I didn’t shower, didn’t do my hair. I threw it up in the messy ponytail I often wear when writing. If I’m honest, I didn’t want to look pretty when Allison arrived. Looking at video of that day, I think I overdid it.


When Allison arrived on her lunch hour from work, she came with an entourage. She was dressed beautifully and her makeup looked amazing. She had an entire camera crew with her. They set up their tripods and mics and cameras in my living room. I picked up my clippers and explained to Allison what I was planning to do and why. I remember it was a hot day and the A/C couldn’t keep up with the heat. I was sweating. She was scared and brave and determined. I suddenly let myself feel the weight of what I was about to do: make Allison look like a cancer patient.


My hand shook. At some point, while running the clippers along the left side of her head, I didn’t notice that the clipper guard had popped off of the blade, and I shaved her hair closer than I had planned. I had to recut everything that length, barely above her scalp. I hated that moment because even though I was doing something simple, something that required little real skill or artistry, I desperately wanted it to be perfect.


Annie & Allison
July 1, 2011
This was big and important. I was changing the way the World would see this person. When I finished and shut off my clippers, Allison’s cancer would not be just a private conversation anymore. The haircut would make it public. It wouldn’t be something invisible, inside of her, or what used to be where the scar is now. It would be in the mirror everyday.


I remember handing Allison that mirror. I think I told her “You’re lucky. You have a beautifully shaped cranium.” In truth, she looked gorgeous – quite honestly more beautiful than before. Suddenly, she was all eyes and lips and cheekbones.


Was it a great haircut? Yes. Priceless.


Allison on the Set of What the F@#- Is Cancer and Why Does Everybody Have It?
December 2012


Allison, with no evidence of disease in her body,
having fun at a party
February 24, 2013






Thursday, March 14, 2013

BALLOON KISSES TO HEAVEN: ONE FAMILY’S BATTLE WITH BRAIN CANCER

THE WHY? FOUNDATION - TOUCHSTONE THURSDAY
by Alia Tarraf
Jason and Sienna in the Stride to Save Lives walk for brain tumor research, 2006


Debra and Jason were a vibrant young couple who met their sophomore year of college in 1995. They lived in the same dorm. They spent their weekends hanging out with friends, going to dinners, movies, bars and outdoor festivals. Their favorite songs were "Man in the Mirror" by Michael Jackson and “Tiny Dancer” by Elton John. A few years later, they were married and decided to start a family. Debra and Jason were the all American love story.
In January of 2006, Debra was holding their five day old first born daughter when Jason went into a seizure. Scared and unsure of what was happening, Debra waited for the paramedics to arrive. It was three hours in the ER before they knew what was wrong. Jason had Astrocytoma, cancer of the brain. He was 30.
It seemed impossible. He was strong, athletic and healthy. Debra and Jason decided to fight. He did radiation and went into remission. But two years later, Jason was diagnosed with Glioblastoma. He had oral chemo and gamma knife radiation.
Three months later, it spread to his spine. Again, Jason had chemo, gamma knife radiation.
He underwent every treatment prescribed to him and then just a few months after the birth of his second daughter, Jason lost his battle with cancer on Feb. 21st 2009.
Debra was devastated, but she knew she couldn’t just give up. She had two beautiful young children she had to take care of.
So Debra picked herself off the floor and kept going.
HOW DID YOU KNOW WHAT TO DO AFTER THE DIAGNOSIS?
We didn't. We followed the ER doctor's advice and waited to talk to the surgeon the next day. Our insurance wouldn't cover the hospital we were at so we came home the following day, made lots of phone calls to meet different doctors and stressed over an insurance referral. It was awful. We were able to switch insurance plans and get a referral to a specialized institution.
HOW WERE YOU ABLE TO SWITCH YOUR INSURANCE PLAN AFTER HIS SEIZURE?
We had an HMO at the time which needed a referral to go to a specialized institution. We were able to finally get approval but changed to a PPO as soon as he could switch his plan.
HOW DID YOUR WORLD CHANGE WITH YOUR HUSBAND’S DIAGNOSIS?
Life became about spending days together. Jason went on disability leave right away and I took an extended maternity leave. We had lots of friends come and babysit so the two of us could spend time together. He was home with us until he had to go into the hospital for care and then later to a nursing home where he passed.
WHAT WAS THE HARDEST PART OF WATCHING YOUR HUSBAND FIGHT CANCER?
Watching him become someone he was not. He slept all the time…wouldn't eat. Watching him slip away into a different person and wonder why he was given this part of life.
WHAT DID YOU DO TO SHOW YOUR SUPPORT?
I went to every appointment and treatment with him that I could. I traveled to get other opinions. I let him sleep. I bought him McDonalds McGriddles and froze them since it was the only thing he would eat.

HOW DID YOU GET THROUGH THE DAY-TO-DAY?
I have no idea. I have a lot of amazing friends that helped us. My girls helped. I'm not sure I would still be alive today without them. I thank God everyday for them.
HOW DID JASON’S CANCER FIGHT HIT YOU EMOTIONALLY?
Both my girls were really little when he was sick. I would sit in the rocker, rock them to sleep and cry. I would lay on the floor in their room and cry while he was upstairs sick. My heart was breaking to see the strongest person I knew emotionally and physically dying. I felt lost losing my best friend and not having someone there that understood what this was like for us.

WHAT DID YOU TAKE AWAY FROM THE EXPEREINCE?
Small problems just don't really matter in the grand scheme of things. There are so many bigger things to worry about. Also, tell people you love them as much as you can. I have no regrets with Jason knowing that and I am so thankful for that being the last thing I said to him.
WHAT ADVICE DO YOU HAVE FOR FRIENDS, FAMILY AND CO-WORKERS OF CANCER FIGHTERS?
Ask for help. Seek out other opinions. Spend as much time as you can with the person fighting but also find time for yourself and don’t feel guilty about it.
WHAT ADVICE DO YOU HAVE FOR THE MEDICAL PROFESSION?
Spend money on research. Spend money on making cancer fighters more comfortable with treatment. Help them have many options in treatment.
WHAT ADVICE DO YOU HAVE FOR OTHER CARETAKERS?
Have faith. Spend time with loved ones. Take lots of pictures and videos. Be positive but also realistic. Ask a ton of questions to your medical team and know your options. Prepare yourself and your family for the worst. Help them feel ready in case they need to make medical decisions for you and how to care for themselves if you die.
HOW DO YOU FEEL ABOUT THE FUTURE?
Scared. For my girls that have to go on without truly knowing their dad. And scared that someday I might lose someone else close to me to this disease and knowing I will have to face it again.
HOW ARE YOU DOING NOW?
I am doing pretty good now. Good days and bad. I met someone in July 2011 that has been very supportive of my life. I miss Jason every day. He can never be replaced but I know he would want me to be happy and the girls to have a father figure around them.

WHAT MAKES YOU FEEL CLOSE TO HIM?
I made a CD of some of his favorite songs and I listen to it a lot in the car. I wear a pair of his socks or one of his T-shirts on a day that I'm really missing him. There are days that I swear he is sitting next to me in my car. Sometimes I'll just hold out my hand that he used to hold while I drove and talk to him.

WHAT IS A FUN THING YOU DO WITH YOUR GIRLS TO CELEBRATE THEIR DADDY?

Jason used to call the girls “Little Buggie” and “Baby Buggie”. Those are the names I call them now and they know it’s because their dad called them that. They love it. Every Father's Day and Jason's birthday, we go to McDonalds, his favorite, for breakfast and buy him a balloon to kiss and send up to heaven.

FOR YOU IN ONE WORD WHAT IS CANCER?
Shitty. If that's too harsh…I would say, “painful”.

It’s been four years since Jason passed and Debra has continued to stay strong. Their daughters, Sienna, now 7, and Sydney, now 4, are blooming. Sienna is in Daisy Scouts and loves singing, acting, putting on shows and telling stories. Sydney tap dances and is a ballerina. And they know Jason will always be their number one fan.
 www.thewhyfoundation.org

Thursday, March 7, 2013

Perspective: Coming Out the Other Side of Childhood Leukemia

THE WHY? FOUNDATION - TOUCHSTONE THURSDAY
by Alia Tarraf

Brett Newton and his family (Brett is second from the left)


In the fall of 1995, when most 11-year old New Jersey natives were riding bikes with their friends, Brett Newton was giving himself his own shots to ward off the side effects from his T-cell Acute Lymphocytic Leukemia treatment.  It happened fast.  Brett was your average kid.  Strong and determined, he excelled in dance, swimming and gymnastics, a rising star in his family.  Then one day it was gone, triggered by cancer found in his blood, and everything changed.  At one point, Brett’s muscles had atrophied from being bed ridden for so long that he could hardly walk.

How does a child who has to take morphine for the pain endured from basic tasks such as eating and drinking, find the strength to keep going?  Unsure of how long he had to live, Brett decided he wasn’t going to let cancer beat him.  At 11, he was focused.  Brett forged ahead and fought.  After over three years of treatment, and with the help of his parents and sister, Brett survived.  He has no evidence of disease in his body.  Now 28, and an actor and artist living in Los Angeles, Brett splits his time between his creative endeavors and giving back through organizations like Paul Newman’s Hole in the Wall Gang Camp.

WHAT KIND OF CANCER DID YOU FIGHT?
T-cell A.L.L.  Acute Lymphocytic Leukemia.  It was blood cancer so it affected my whole body.

WHEN WERE YOU DIAGNOSED?
November 22, 1995.  I was 11 years old.

HOW LONG HAS THERE BEEN NO EVIDENCE OF DISEASE IN YOUR BODY?
15 years.

IS THERE A HISTORY OF CANCER IN YOUR FAMILY?
I had an uncle with leukemia and another uncle with a brain tumor.

DO YOU KNOW WHERE YOUR CANCER CAME FROM?
They suspect environmental, but in reality, no.

WHAT TYPE OF TREATMENT DID YOU GO THROUGH?
Chemo, Intrathecal (treatment in the spinal cord) and Cranial Irradiation.
My treatment started November 22, 1995 and ended January 4, 1999.

DID YOU EXPERIENCE ANY SIDE EFFECTS FROM TREATMENT?
Nausea and plenty of it.  My body’s immune system was low all the time and there was actually a period in my treatment when I became a temporary diabetic.  I gave myself my own shots, I thought that was cool.

WHAT IS YOUR MEDICAL MAINTENANCE SCHEDULE NOW?
Annually I have to do a CBC, Chemistry Profile, Urine Analysis, Thyroid Function, Baseline Lipid Profile, Baseline FFH, LH, Testosterone and an Ophthalmologic exam. Every 2 years, I have an EKG/Echocardiogram.  

HOW IMPORTANT DID YOU FIND DIET AND EXERCISE IN GETTING THROUGH TREATMENT AND SURGERY?
Very important.  I never wanted to leave the bed but my parents kept me moving, dragging me out of bed, so I would have some muscle use.  They are the reason I am back on my feet today.   My mother also made sure my diet was the most healthy it could possibly be.  She also did a huge regiment of holistic medications that saved my heart, bones and body, among other things.

HOW DID YOU GET THROUGH THE DAY-TO-DAY OF YOUR CANCER FIGHT?
My father and I probably built every single WWII model airplane, tank and boat there was.  I built them, he painted them.   It was all about having a great attitude all around me.   I was surrounded by great people and in my mind I always knew I was going to live. 

HOW DID YOU FIGHT CANCER EMOTIONALLY?
I just looked forward and had great parents. 

WHAT DOES BEING A SURVIVOR FEEL LIKE?
It feels normal.  It’s what I went through in life to make me who I am today, so to me it’s normal.

WHAT ADVICE DO YOU HAVE FOR OTHER CANCER FIGHTERS?
Keep a positive attitude and great people in your life and trust your instincts.  

WHAT ADVICE DO YOU HAVE FOR FRIENDS, FAMILY AND CO-WORKERS OF CANCER FIGHTERS?
Keep a positive attitude and motivate your friend or family members.  They are still the same person, so treat them that way.

HOW DO YOU FEEL ABOUT THE FUTURE? WHAT ARE YOUR HOPES AND DREAMS?
I feel like it’s coming pretty fast.  My hopes and dreams are to be a consistently working actor and producer and just make that my living.  I want to be able to travel at a moment’s notice and spend more time with my family and the people I love.  I also want to get married to an amazing woman and have kids one day.

FOR YOU IN ONE WORD WHAT IS CANCER?
Experience.

Thursday, February 28, 2013

Male. 24. Ductal Carcinoma In Situ Stage 1 Breast Cancer. Meet Bret Miller.


THE WHY? FOUNDATION - TOUCHSTONE THURSDAY

by Katherine Ferrara & Allison W. Gryphon



“You have breast cancer” isn’t exactly what the typical 24 year old male expects to hear from his doctor. Bret Miller thought the lump on his chest might be something, but the 2010 diagnosis certainly was not what he was expecting. Holding down two jobs, as a bartender and pool/ice rink manager, Bret was faced with the third job of battling cancer and opted for a fourth, starting the Bret Miler 1T Foundation for breast cancer education and awareness.

What kind of cancer did you fight?
Ductal Carcinoma In Situ Stage 1 Breast Cancer.

Is there a history of cancer in your family?
There is history on both sides of my family. There have been seventeen cases of breast cancer in my cousins. All women.

Do you know where your cancer came from?
I don't have the gene.

Did you think you were at risk?
Not in a million years would I have ever thought I would have breast cancer or any of the cancers.

What type of treatment did you go through?
I had a mastectomy on my right breast in May 2010. From July 2010 through September 2010, I went through four rounds of chemotherapy.

What was your recovery from surgery and treatment like?
Throughout my entire diagnosis, surgery and treatment, I missed a total of one week of work. I was never tired from the chemo. I got lucky with everything that happened.

Did you experience any side effects from treatments or surgery?
I lost my hair. I was never nauseous. I had the body aches once only because I forgot to take my steroid pills before and after my second treatment. I took them the following day and felt better.

Are you in any type of treatment now?
No treatments!

What is your medical maintenance schedule now?
I have check ups every six months.

How important did you find diet and exercise in getting through treatment and surgery?
It is very important to do diet and exercise while going through treatment and surgery, but don’t push yourself if you don’t have the energy. Also if your blood cell counts are low, do not go to the gym because of possible germs and infections that could result. I had to stay away from the gym for a couple of weeks due to low counts.

How did you get through the day-to-day of your cancer fight?
I went through every day like nothing had ever happened. It never phased me that I had breast cancer. I still worked forty plus hours a week at the pool I manage and worked an additional two shifts a week bar tending.

How did you fight cancer emotionally?
I had the support system of my family and friends to get through it all. But I never had the mind set of, “Oh poor me, I have breast cancer.” It was just a roadblock in my amazing life.

What does being a survivor feel like?
Amazing. I am living life to the fullest and not having a care in the world. I am a warrior and proving it every day.

What advice do you have for other cancer fighters?
You will beat this. With the determination and support of your family and friends, you will have no trouble kicking it’s ass.

What advice do you have for medical professionals?
Don’t forget about men. Check them for breast cancer too. Cancer does not discriminate so neither should they. I had mentioned my lump to my doctor when I was seventeen, but he never looked at it. He just said it was a calcium buildup and that I was becoming a man and it would go away. It never did.

What advice do you have for friends, family and co-workers of cancer fighters?
Be very supportive. This is an easy time for the patient to think they won’t beat this or that they are in this alone when they aren’t. Also use humor, it is nature’s best cure.

How do you feel about the future? What are your hopes and dreams?
I am totally optimistic. Anything that comes my way I will conquer. My hopes and dreams are to expand The Bret Miller 1T Foundation to a whole new level and let others out there know that cancer is very beatable by building awareness, and that early detection is key in the fight against breast cancer.

For you in one word, what is cancer?
Beatable.


To learn more about Bret Miller and the Brett Miller 1T Foundation visit www.CheckThem.org

To read our interview with Brett’s mother, Peggy, Click Here


Thursday, February 21, 2013

THE CALL NO MOTHER WANTS: YOUR SON HAS BREAST CANCER

THE WHY? FOUNDATION - TOUCHSTONE THURSDAY


by Kathryn Ferrara & Allison W. Gryphon

Peggy Eddy Miller. Married for thirty-one years. Four kids. Owner of two family run Kansas City businesses, MMG Frozen Drink Rentals Company and Memory Productions Videos. At 57, Peggy was happily living life when her 24 year old son, Bret, was diagnosed with breast cancer.

What do you do when you get that call? After fear, shock and the feeling of helplessness ripped through her world, Peggy pulled it together.

Surrounded by family and friends, she fought for her son by educating herself, being pro-active with the doctors and holding tight to prayer. Peggy took on cancer as her son’s primary caretaker and self-proclaimed “administrative assistant” which as any cancer fighter will tell you, is of the upmost importance.

After a mastectomy and four rounds of chemo, there is no evidence of disease in Bret’s body.

With her newfound knowledge and fierce courage, Peggy supports her son’s campaign to raise awareness and fight breast cancer through The Bret Miller 1T Foundation and through sharing her perspective as both mother and advocate.

How did cancer come into your life?
It took seven years and Bret with the lump under his right nipple and a doctor finally thinking it was something more than calcium.

When was your son diagnosed?
April 28, 2010. Bret was driving from his first job to his second and the doctor calls his cell phone, not even asking could he talk or anything, and says, “I just wanted to let you know you have cancer.”  Bret was on a busy traffic way and almost wrecked his SUV.  Then he called his dad. We both were at our office desks and I said, “Was that Bret?” and he said, “Yes. The doctor called and he has breast cancer.”

How did you know what to do?
My instincts took hold and I called the doctor, who was not available of course, so I called a good friend who works in pathology, Mary. She said, “Calm down. He will get through this.”  She told me to get the pathology report and she would let me know what was going on.  I got the report.  The first words out of Mary’s mouth were, “Bret can beat this.”  That was all I needed to hear. 

How did your world change with your son’s diagnosis?
We were in cancer overload.

What was the hardest part of watching Bret fight cancer?
Not being able to take the pain away.

What was the best part of fighting cancer with Bret?
The people we have met along the journey.

How did you get through the day-to-day of Bret's cancer fight?
Lots of prayer.

What advice do you have for friends, family and co-workers of cancer fighters?
Pray and give support.

What advice do you have for medical professionals?
Listen to your patients.

What advice do you have for other cancer fighters?
Fight. Do not give up.

What are your hopes and dreams for Bret?
To continue spreading the word of awareness and early detection.

For you, in one word, what is cancer?
Battle.




To learn more about Peggy, Bret and The Bret Miller 1T Foundation, visit www.CheckThem.org

Next week we will post our interview with Peggy's son Bret.



Friday, February 8, 2013

A United Front: Filmmaker Allison W. Gryphon’s Battle with Breast Cancer


THE WHY? FOUNDATION - TOUCHSTONE THURSDAY

by Derek Martin Wade

If you were to ask Allison about her bout with stage III breast cancer she would not tell you about the three surgeries, six rounds of chemotherapy or month of radiation treatments she endured. She would probably not tell you about the tattoos burned into her chest that guided the lasers to the exact location of the cancer cells but she might tell you that she didn’t have a ‘bout’ with cancer. It was not a sparring match but a dirty fight, not a skirmish or a battle but a war.  Allison W. Gryphon; award-winning screenwriter, novelist and filmmaker brought every weapon in her arsenal to cancer and now she has two more; her forthcoming film What the F@#- is Cancer and Why Does Everybody Have It? and the TheWhy?Foundation.org

In Gryphon’s new film, What the F@#- is Cancer and Why Does Everybody Have It?, set to join the film festival circuit this summer, people are asked to describe cancer in one word. In my conversation with Allison, she said that when she asked her oncologist, who was at first stumped by the question, he pinpointed it in three words, “Enemy number one.”



Allison never expected to get “Enemy number one” let alone a cancer that had progressed as far as it had. She was in an age group of women who were less likely to get cancer; she was 38 years old, well below the 45 year olds and older group who were ten times more likely to be diagnosed with the same disease. In addition, a history of breast cancer did not exist in her family. Allison was also a self-admitted pilates addict and was in excellent physical shape. She cared about her body and what she put into it. She ate a healthy diet but was diagnosed with cancer anyway.

Three days after her diagnosis, Allison sat in a coffee house drinking the best coffee she had ever had and she felt “wide awake.” Everything that mattered, mattered so much more. She would no longer live her life the same and nothing would be taken for granted. It was a wake-up call.

Allison W. Gryphon did not live her life preparing for a battle with cancer but when cancer did come she was in top fighting form. German philosopher Friedrich Nietzsche said, “The best weapon against an enemy is another enemy” and Allison was about to become breast cancer’s worst enemy. Allison believes that it is her healthy lifestyle that contributed to her success and gave her the strength to carry on through the rigorous chemotherapy and the cancer cell-killing radiation. In addition, she enriched her body by redefining her healthy diet by “eating clean;” a diet of organic, unrefined, minimally processed and locally grown food including antibiotic-free and growth hormone-free meats.

Allison believes that a cancer patient has to be a cancer fighter, to be proactive in their own recovery and to ask for help. She says “Fighting cancer is a team sport.” Allison’s team includes an army of friends and the The Why? Foundation.

There are hundreds of breast cancer websites that provide information in black and white text, statistics in graphs and pie charts bordered by pop up ads selling everything pink. Websites like these are filled with the ‘whats;’ What is Cancer? What are the symptoms? What are the treatments? What are the drugs and what are the chances? Nothing in these websites, including the website for the largest fundraiser for cancer research in the world aside from the U.S government, offers support for the newly diagnosed, provides emotional support for the recovering patient and answers the question ‘why?’

Allison Gryphon’s The Why? Foundation strives to provide a place for cancer patients and survivors to find answers, seek out support, community and real help. This place is an outlet for Allison’s experience as patient and survivor offering guideposts for others as well as a place for other sufferers and survivors to share their experiences. The Why? Foundation tells the recovering patient what to expect after treatment like how the simple things in our daily lives suddenly become very difficult.

There were slightly more than 230,000 new cases of invasive breast cancer diagnosed in the U.S. in 2011 of whom Allison W. Gryphon was one of them. That year almost forty thousand women died from the disease in the U.S. alone. That’s more than all the highway deaths and almost three times the homicide rate in the U.S. Allison produced her film for those cancer patients recently diagnosed and the additional 500,000 and more who are in varying stages of treatment as a means to create a united front to combat the deadly disease.

Today Allison W. Gryphon is believed to be cancer-free, is checked quarterly and is still fighting.



Thursday, January 31, 2013

Helping Others With What You've Got: How Alia Let Go Of Her Locks


THE WHY? FOUNDATION - TOUCHSTONE THURSDAY
by Why? Foundation Street Team Member, Alia Tarraf

I love having long hair.  Its part of my personality.  It tells the world a big part of who I am and what I'm feeling on any particular day.  I can wear it part way up on days I want to feel like a Disney princess.  Or pulled back in a bun when I mean business.  Or a messy ponytail when I feel artistic and creative.  Sometimes I even wear it down just because I want to hide from the world.

Like so many women, my hair is a part of who I am and very often, I've allowed it to define me.  We're told that its a part of our beauty.  And our beauty is so wrapped up in who we are and can unfortunately dictate our confidence levels.


So when I saw my friend, Julie, with a freshly shorn bob at a party after college one night, I marched up to her and demanded to know what happened to her long beautiful chocolate brown hair.  She replied nonchalantly, "I gave it to Locks of Love."  Oh great, some hippy dippy charity.  "What's that?"  I asked, bewildered.  "It's a charity that makes hairpieces for people who don't have hair due to a medical condition."

No.  No, I was not going to feel guilty for this.  Julie wasn't condemning me at all, she just simply told me what I had asked.  She had almost shrugged.  Shrugged off that she didn't care her long hair was gone.  Now, I know this all might sound incredibly vain and silly, but I had somehow linked my worth to my beauty, i.e. my hair.  Julie was helping someone else, and had the self-confidence to do it, and I didn't.

I went to bed that night and couldn't stop thinking about it.

I decided to go on the Locks of Love website, just to check it out.  Not that I would do anything.  It turns out that Locks of Love not only provides hairpieces for people who don't have hair due to a medical condition, they specifically help disadvantaged children under age 21 suffering from long-term medical hair loss from any diagnosis.


 "Our mission is to return a sense of self, confidence and normalcy to children suffering from hair loss by utilizing donated ponytails to provide the highest quality hair prosthetics to financially disadvantaged children.  The children receive hair prostheses free of charge or on a sliding scale, based on financial need."

Seriously?  Who are these people?  Because they just turned me into a jackass in about two seconds.  Was I really going to let my vanity and insecurity come before a disadvantaged child with no hair because of a medical diagnosis?  Who had I become?  My problems suddenly seemed super lame.  1. These kids are dealing with a medical condition, from alopecia areata to cancer.  2. They lose their hair because of it.  3.  They don't have the means to fix it.  Yeah, it was time to get over myself.  I needed to do this and if I lost my attractiveness, well, hopefully it would grow back.

I walked into the salon the next day.  I had googled salons in my area that were associated with Locks of Love and this one gave a free haircut with a hair donation.  They have them all over the country.  The hairstylist braided my hair, measured the minimum 10 inches required to donate, asked if I was ready, and cut it off.  I'm not going to lie, I may have cried a little.

The salon sent it in the mail to Locks of Love for me the next day.


I'm not saying you need to go out and cut off all your hair.  But I learned there are so many ways we can help others.  Something as small as donating your hair can go such a long way and mean so much to someone else.  This was a wake-up call.  Sometimes I get so focused on myself and can't see past my own nose.  Which, by the way, I wish was smaller.  But seriously, when I remember that so many others have been dealt a much harder hand, I am so humbled.  And I can help.  Even if I don't have the means.  I can donate my hair, I can run an errand, I can volunteer.

And you know what's funny?   I liked my bob.
~




A reminder from India Arie - I Am Not My Hair