Showing posts with label cancer survivor. Show all posts
Showing posts with label cancer survivor. Show all posts

Sunday, November 18, 2012

Thanks, cancer by Kathryn Ferrara


THE WHY? FOUNDATION - TOUCHSTONE THURSDAY

A note from Allison W. Gryphon: 
In creating the Why? Foundation, working on the documentary What the F@#- is Cancer and Why Does Everybody Have it? and fighting my own cancer openly, many unexpected and extraordinary people have come into my life. Most surprisingly and disturbing are the number of young people who have faced cancer themselves or helped others fight the fight. Most recently I met Kathryn Ferrara, a recent college graduate, with unfortunately and fortunately, a profound understanding on what it’s like to stand by someone struck by cancer.



Thanks, cancer by Kathryn Ferrara

I have been surrounded by cancer my whole life, and I never really knew it. I center my life on a few key things, three of which are my family, my faith and my work. And cancer has tangibly left its mark on all of them. Here are three ways it has shaped those pillars.

Mind over matter. Literally.
There’s the saying that if you haven’t had cancer, then you know someone who has. True enough for me since the day I was born. I have a grandfather who survived colon cancer back when it was less curable and more terminal. He was in his mid-forties, and it didn’t look good. I mean, when does cancer ever look good? It doesn’t. But my grandfather was stubborn. There are supposedly five stages of grief in accepting a terminal illness (denial, anger, bargaining, depression and acceptance). Well, my grandfather never got past denial. He simply refused the prognosis and shut the door on death. Everyone in my family agrees that he survived on sheer mental willpower. He passed that on to my mom who passed it on to her kids, including me. He also passed along a passion for literature and writing. My first gift that my grandfather gave me was a copy of Poe’s “The Raven” with his notes in the margin. Now I have a stack of poems from my grandfather and a journalism degree that was inspired by them. Now every October when we celebrate my grandfather’s birthday, I’m that much more thankful. Oh and he turned 81 last month. Denial has doubled his life. So, thanks cancer.

Slap in the face
My grandfather had the good kind of denial when it came to cancer. I experienced the “too-bad-to-be-true” kind of denial in high school. I was in ninth grade. It was a Monday in December, and I started talking with a friend about a sixth grader, Molly, who was battling leukemia and how it was great that the whole school was really coming together and supporting each other (blah blah clichés). My friend paused and said that Molly had died over the weekend. I hadn’t heard. The news cut through all those dumb clichés. It’s unfair that an 11-year-old’s death is what it takes to shake off clichés in general. Up until that point, my whole life was a cliché. After, things got more real. How I looked at life. How I thought about faith and the future. It all became more real. So for that, thanks cancer.

Not just a job
Two years into college, and it was time to finally find a real job (read: unpaid internship). About a hundred applications later, and I was offered a summer internship at The National Children’s Cancer Society. It was ideal career-wise since I’d be dabbling in marketing communications, social media management and getting a feel for the non-profit scene. But it was also ideal life-wise. Transformative really in how I thought about careers. The NCCS is all about passion. The organization is on a very clear-cut mission to help childhood cancer survivors and their families. I can only speak for the marketing side of the organization, but every decision, from the organization’s re-branding to the monthly survivor spotlight story, was important. Each decision carried a heavier weight, i.e. these cancer survivors. It’s the kind of work that not only sustains you but motivates you and encourages you to keep working. It’s the kind of the work that inspires you to jump in the deep end and reach out to people who are fighting cancer, ignorant of cancer or scared of cancer.

So here I am, mid-twenties, and just starting to realize and accept cancer’s role in my life. I never really knew it until I started to think about the big question, “how does cancer affect me?” And darn it, that sneaky little sucker has affected me a lot. It’s made me appreciate a family member more; it’s made me cast off a clichéd life for a more grounded one; it’s made my work less self-centered and more others-centered. So for that, thanks cancer.


Thursday, September 13, 2012

SEVEN MONTHS PREGNANT AND DIAGNOSED WITH BREAST CANCER – HOW ONE WOMAN FOUND THE “SWEET SPOTS OF CANCER”

THE WHY? FOUNDATION - TOUCHSTONE THURSDAY



by Alia Tarraf

“I felt like I was really living before I got cancer.  But now I'm living in full color.  Just yesterday I drove ten hours round trip to surprise my husband at the finish line of his 100-mile Best Buddies bike race [for children with Down syndrome] he did in honor of our daughter, Sadie.  I brought Sadie with me.  It was a surreal adventure that I would have never thought about doing before the cancer.  It was an easy decision to drive the distance just to see Todd's face when he crossed the finished line.  I'm incredibly thankful to be a girl with an attitude of gratitude.  I'm now seeing all my lemons turn to lemonade and life is so sweet.”

Heidi Virkus, a vibrant stay-at-home 39-year old mother of three, was seven months pregnant when she was diagnosed with breast cancer.  It was early in the morning.  Her mother-in-law had just arrived to help her with the kids.  Ten days earlier she had found a lump that both she and her OB thought was just her mammary glands getting ready to produce milk.  Her mother-in-law had just shut the door when the phone rang.  It was Heidi’s doctor.  Everything stopped.  Heidi quickly walked into the garage, her full belly carrying her unborn child, and came undone. 

Already fighting Crohn’s disease, Heidi had to decide whether or not to have chemo during her last trimester.  What would it do to her healthy baby?  What would it do to her family?  She decided she had to take the chance in order to live.  So she could be there for her other children, Sam (8), Sophie (5), Sadie (3), her adoring husband, Todd, and the baby on the way.

After Heidi’s fourth chemo session, she gave birth to an unscathed, perfect little baby girl named Sarah surrounded by her cheering committee.  Two weeks later, she started another four rounds of chemo.  When that ended, she had a double mastectomy.  Then later, a total hysterectomy.  And after all that, she had final breast reconstruction.  Through it all, Heidi’s faith, family and friends lifted her up and helped her fight through, especially Sadie.  Sadie acts as an anti-depressant, teaching Heidi, along with her husband and other children, more about herself than anything or anyone ever could.




WHAT KIND OF CANCER DID YOU FIGHT?
I had breast cancer. It was an isolated tumor that did not spread to the nodes.

IS THERE A HISTORY OF CANCER IN YOUR FAMILY?
My aunt has ovarian cancer and my paternal grandparents had both lung and colon cancer.

DO YOU KNOW WHERE YOUR CANCER CAME FROM?
No, possibly my dad’s side.  I lived on the edge for many years, abusing my body and mind with behaviors that could have contributed, but I'm really not sure.

DID YOU THINK YOU WERE AT RISK?
No.  I have been eating healthy for the past sixteen-plus years, meditating daily and living an anti-cancer lifestyle.

WHAT WAS YOUR RECOVERY FROM SURGERY AND TREATMENT LIKE?
The anticipation was worse than the actual treatment.  I take longer to heal because I have Crohn’s disease.  The hardest part of the healing was after the double mastectomy.  I have a high threshold for pain but the drains and wounds gave me debilitating pain.  Losing my hair and lashes was incredibly humbling, especially for someone like me who is slightly hair-obsessed.  I love hair and makeup.

DID YOU EXPERIENCE ANY SIDE EFFECTS FROM TREATMENTS OR SURGERY?
Yes.  I used and still use acupuncture for the side effects which include: sensitive teeth, numb extremities, nausea, exhaustion, insomnia, light sensitivity, joint pain and hair loss.

WHAT IS YOUR MEDICAL MAINTENANCE SCHEDULE NOW?
Visiting my oncologist and surgeons every six months.

HOW IMPORTANT DID YOU FIND DIET AND EXERCISE IN GETTING THROUGH TREATMENT AND SURGERY?
Early in my chemo treatments, I exercised but as the chemo built up in my system, and the more pregnant I became, I just didn’t have the energy anymore.  I fed my body three square meals a day, all with anti-cancer foods.  The food was fuel and medicine.

HOW DID YOU GET THROUGH THE DAY-TO-DAY OF YOUR CANCER FIGHT?
I was armed with the support of my friends, family and fellowship.  I was completely taken care of.  I surrendered to the healing process, but fought the cancer with everything I had.  I surrounded myself with positive people, asked for help, let people help me and actually enjoyed many moments.  I’ve thought about writing a book called the “Sweet Spots of Cancer” because I was so surprised that I embraced the process with looking for the good.  

HOW DID YOU FIGHT CANCER EMOTIONALLY?
My anti-depressants were my kids, especially pure and sweet Sadie.  I just had and do have so much to live for.  Even knowing that my unborn child needed me kept me going.  My hubby and I grew closer.  I continued to do as much life as I could.  Practicing my faith and belief in God helped tremendously.  I already had walked through having a special needs child. We knew we could handle cancer.

WHAT DOES BEING A SURVIVOR FEEL LIKE?
I am woman.  Hear me roar!  I am tougher than I thought.  It’s just such a huge relief. On the other hand, it’s super hard to readjust to “normal” life.  I’ve had a whirlwind of a year and during that time I had a baby too!  It’s almost like I’m waking up and saying, “Oh, wow, when did this fourth kid come and live here?”.   The calm after the storm with just gray days are actually sometimes more difficult than the high drama of the past cancer-fighting year.

WHAT ADVICE DO YOU HAVE FOR OTHER CANCER FIGHTERS?
Take good care of yourself.  Not just for you, but for the people around you.  Ask for help.  Sleep.  Write.  Shop a little.  Go on walks.  Watch TV.  Read.  Talk.  Cry.  Cry some more.  Laugh.  Eat Well.  Pray.  Thank.

WHAT ADVICE DO YOU HAVE FOR THE MEDICAL PROFESSION?
Keep an open mind to new treatments and ideas.  Anything is possible.

WHAT ADVICE DO YOU HAVE FOR FRIENDS, FAMILY AND CO-WORKERS OF CANCER FIGHTERS?
Buckle your seatbelts and put your own oxygen mask on first.  I made sure my husband and family were not completely putting their lives on hold.  Find healthy outlets.  You’re fighting this together.  It’s sometimes harder for the caregiver than even the patient.

HOW DO YOU FEEL ABOUT THE FUTURE?  WHAT ARE YOUR HOPES AND DREAMS?
I want to live until I’m 120 years old.  I had kids a little later in life so I want to be a fully functional grandma someday.  I just want to be healthy and enjoy watching my kids grow up and make life choices that support healthy and happy living.  I have become more of a giver because of this process.  The people in my life poured money, food, time, energy and love my way when I was sick.  It’s time to give back.

FOR YOU IN ONE WORD, WHAT IS CANCER?
Life.


SMILE FOR CANCER FIGHTERS!
Click here to visit The Why? Foundation
and add your smile to our WALL OF SMILES
www.thewhyfoundation.org/wall-of-smiles/




Thursday, August 23, 2012

HARLEY, THE CANCER FIGHTING GOLDEN RETRIEVER






by Chaz Salembier and Allison W. Gryphon

The average age of a Golden Retriever is ten to twelve years, so when at the age of six the beloved Harley was diagnosed with cancer, no one knew what to expect. All that her owners, Pat and Bill, were sure of was that their Harley was a lover and a fighter. She would do what needed to be done. 

The mast cell tumor, which Pat discovered in Harley’s leg, led to surgery and eighteen rounds of radiation. Harley shined through the operation. It was radiation that was the tricky undertaking. The thing with radiation is the patient must remain still. It’s not easy for anyone and sedating Harley for eighteen treatments was simply not an option. There was concern, but hope, and somehow Harley knew what to do. She stepped up onto the table for every appointment and remained still, all alone in the room, while the radiation zapped her cancer.

The radiation burned Harley and she has the scar to prove it, but she wears it like a badge of honor and has recovered full use of her leg.

Four years after her cancer fight, Harley turned ten. Shortly thereafter Pat and Bill found another tumor. It was on the back of Harley’s paw.

Once again, Harley was faced with surgery. Because of her age and concerned with her quality of life, Pat, Bill and the vet decided not to put Harley through radiation therapy.

Harley sailed though surgery with flying colors and again, made a full recovery.

This month, Harley will turn fourteen. To this day, she still enjoys rides in the car, the occasional steak dinner, and spending time with her younger sister, Zelda.

For Pat and Bill, Harley is still the same wonderful and loving dog she’s always been.

For all of us who have had the opportunity to meet her, Harley is an inspiration and a hero.

Click here to visit THE WHY? FOUNDATION  and learn more about
our WALL OF SMILES$5 Cancer Documentary Fundraiser